Colonoscopy schedule creep

While I am grateful to the medical community for all the excellent treatment I’ve received over the years, my expectations are high, and I am disappointed when they do things that are not in my best interest. Nothing bad happened, but you could still call this a cautionary tale about manipulation and will.

I am BRCA-positive. The three biggest risks for me are ovarian cancer, breast cancer and colon cancer. I’ve already had ovarian and breast, so, you know, only one left.

Because of my BRCA status, I am on the five-year plan for colonoscopies. I’m due in 2020. I’ve never had an abnormal result, but they like to keep close tabs. At my annual physical, my primary care physician said she’d start the referral process for the colonoscopy. Faster than you can say Jack Robinson, I get a call from the gastro clinic wanting me to come in for a pre-screen.

I said, “I don’t want to do it until 2020.” I did not say, “Because my last colonoscopy was in 2015. I’m on the five-year plan. Do the math.”

She said this is just a pre-screening with the nurse practitioner. Fine. I went this week, and first off, I did not like the nurse. She had sort of a fake kindly voice but only wanted one-word answers to her questions, and I got the distinct feeling she would lock me in an insane asylum if she could. Not that she would be the first.

The pre-screen all went well, and then she said, “OK, let’s get you scheduled!” It was like the Party City ads on TV:

Oh, it’s on.

She escorts me to a room, where a clerk is ready to schedule my event. I said, “I don’t want to do it until 2020.” She said, “We don’t book that far out in advance.”

I said (in my outside voice) this is bullshit.

“I told the person who called me to schedule this appointment I wasn’t due for my five-year check-up until 2020.” She said, and I quote, “Oh.”

Then she explains I’ll simply need to call back as we get closer to the date. What? December? January? There was no specific guidance. Then for the kicker, she added, “We already sent your prep kit to the pharmacy, but don’t worry, it has a long shelf life.”

I was not amused. Because I am a worry wart, I’m thinking, what is a long shelf life? What if I drink all that crap and have to do it again because it wasn’t fresh? By the time I got home, I was hungry and pissed. I made myself a monster tuna melt with good Swiss cheese and Dale’s homemade bread, and it was comforting and delicious.

As I sat there eating what Dale called my Hearty He-Girl Lunch, I recounted the story to him. I explained my dilemma. Every five years is enough. Even though it’s just a couple of month’s difference, doing it in 2019 basically cheats me out of a year. Because next time, they will say, oh, you had it done in 2019. Your next one is in 2024, not 2025, as previously scheduled.

Of course, I could get over my snit and do it this year. I’ve already met the deductible. Nothing prevents me from speaking up and correcting this when they push for the next one in 2024. But I hate getting manipulated because they run a colonoscopy mill.

As I write this, I’m half-way talking myself into doing it after Thanksgiving but before Christmas. In the end, getting the colonoscopy done a few months earlier is no big deal if I dismiss the manipulation charges.

All vigilance is in the interest of my continued good health, right? When I remind myself I am very lucky to have survived both ovarian and breast cancer, I’m exceedingly grateful and not nearly as pissed about the colonoscopy schedule creep.

I am reminded of the quote from Mother Blues by the musician Ray Wylie Hubbard.

“And the days that I keep my gratitude higher than my expectations, well, I have really good days.”

10 thoughts on “Colonoscopy schedule creep”

  1. You give me hope Donna. I just found out my breast cancer is back after nine years, getting tests to see if it has spread, then most likely chemo and double mastectomy. There was talk of not being able to do the surgery. It involves my chest wall and they are concerned it might have gone through. You give me hope. Thanks!

    1. You are welcome. I wish you all the best. I did not have reconstruction. If you should decide the same, please feel free to reach out if you have any questions.

  2. Depending on your insurance, you might also have to consider whether insurance will pay for it. I know with mammograms, I cannot go in one day before a year from my last test. Colonoscopies could be different, but I would check with insurance before booking the appointment.

  3. I would wait till 2020. why go earlier? I’ve not even had a colonoscopy yet, yes, yes, I know….. but I’m just not interested yet. Maybe next year.

  4. I agree you should wait until 2020. And do check out what your insurance says, as I know that it may require you to go exactly 5 years later in order to be covered. Why spoil the rest of this year? Enjoy the holidays and then think about a colonoscopy. My last one was much easier than the first one. I’m talking about the prep. I keep hoping they’ll improve the process so much there’s almost no prep!! I’m not dreading the next one like I used to.

    1. Yes, I’m waiting until 2020. I appreciate your thoughts on the subject! I’m also hoping they continue to improve the prep. That’s the worst of it.

  5. Health reasons aside, which is the reason to go as long as insurance approves it, you’re spot on about manipulation. Our health is big business. I used to let my car tag lapse a day because you’d get that month’s sticker. 12 of them and you got a free year of inspection. We keep our cars that long so it worked.

    Just do it! Sorry about that cliché – but you’ll be done for another five years and you can be the one to manipulate the schedule next time! 😳

    1. Interesting about the car sticker. How clever! I’m going to have to call and see what the insurance covers. I will do it one way or the other.

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